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Chapter 13 Support Groups
Section 2: Advocacy, Education, Support
The following organizations provide consumer advocacy and public education about disabilities. Some also offer social and recreational activities, as well as service projects and peer support.
American Diabetes Association
ATTN: National Call Center
1701 N. Beauregard St.
Alexandria,
VA
22311
800-342-2383 Toll Free
AskADA@diabetes.org
www.diabetes.org
For diabetes-related questions or to request a diabetes information packet, call 800-342-2383 or email us at AskADA@diabetes.org. In order to better serve you, please provide your name and address along with your request.
American Diabetes Association - Oklahoma City
3000 United Founders Blvd., Ste. 108
Oklahoma City,
OK
73112
405-840-3881 Voice
405-840-3899 Fax
American Diabetes Association - Tulsa
6600 S. Yale Ave., Ste. 1310
Tulsa,
OK
74136
918-492-3839 Voice
918-492-4262 Fax
Brain Injury Association of Oklahoma
P.O. Box 88
Hillsdale,
OK
73743-0088
information@braininjuryoklahoma.org
www.braininjuryoklahoma.org
Brain Injury Association of Oklahoma is a private, not-for-profit corporation serving persons with traumatic/acquired brain injuries (TBI/ABI), their families, professionals and the community. This Association is a state chapter affiliate of the national Brain Injury Association, Inc.
The Brain Injury Association of Oklahoma does not support, endorse or recommend any method, treatment, or program for brain injury. They only try to inform you, believing you have the right to know what is available. No endorsement is intended or implied.
CarePoint Inc. of Oklahoma City
A Consortium of AIDS Resources and Education
1200 N. Walker, Ste. 500
Oklahoma City,
OK
73103
800-285-2273 Toll Free
405-232-2437 Voice
405-232-2447 Fax
Information on HIV/AIDS. Case management, housing and utility assistance, nutritionist, mental health services, dental and eye care services, HIV employment program. Serves 405 and 580 area codes of the state.
Specializing in employment and retention services for individuals with HIV and AIDS.
Defeat Diabetes Foundation, Inc.
150 153rd Ave., Ste. 300
Madeira Beach,
FL
33708-1856
877-391-5051 Toll Free
This organization informs, educates and alerts the general public, diabetics, pre-diabetics and elected officials about the disease.
Diabetes Solutions of Oklahoma
4005 N.W. Expressway, Ste. 600
Oklahoma City,
OK
73116
405-843-4386 Voice
Diabetes Solutions offers a variety of programs and resources to address two fundamental needs: Reducing the incidence of diabetes (reducing the incidence of Type 2 Diabetes through prevention, reducing the complications of diabetes through patient and professional education)And improving the quality of life for those who have diabetes.
Epilepsy Association of the Sooner State
711 Stanton L. Young Blvd., Ste. 550
Oklahoma City,
OK
73104-5022
800-503-9864 Toll Free
405-271-3232 Voice
405-271-3366 Fax
The Epilepsy Association of Oklahoma provides knowledge and information about the causes and treatments of epilepsy and the many different types of seizures; and provides information and guidance to those with epilepsy, their families and friends.
FamilyConnect
familyconnect@afb.net
www.familyconnect.org
FamilyConnect is an online, multimedia community created by the American Foundation for the Blind (AFB) and the National Association for Parents of Children with Visual Impairments (NAPVI). This site gives parents of visually impaired children a place to support each other, share stories and concerns, and link to local resources. The site also features a mom-authored blog, inspiring video testimonials from families, and articles authored by parents and experts in the field of blindness on multiple disabilities, technology, education, and more. From the personal to the professional, families will find all the resources they need to raise their children from birth to adulthood.
Mid-America Paralyzed Veterans of America (MPVA)
6108 N.W. 63 St.
Oklahoma City,
OK
73132
800-321-5041 Toll Free
405-721-7168 Voice
405-721-1829 Fax
mapva@sbcglobal.net
www.mapva.com
The Paralyzed Veterans of America (PVA) is a nonprofit organization chartered by the United States Congress and dedicated to serving the needs of its members.
PVA is a leading advocate for: Quality healthcare, research and education addressing spinal cord injury and dysfunction, benefits, civil rights and opportunities that maximize the independence of our members.
National Alliance on Mental Illness (NAMI) - Oklahoma
500 N. Broadway Ave., Ste. 100
Oklahoma City,
OK
73102-6200
800-583-1264 Toll Free
405-230-1900 Voice
405-230-1903 Fax
nami-OK@swbell.net
ok.nami.org
A state resource for up-to-date information or support on mental illness.
National Association for Parents of the Visually Impaired (OK-NAPVI ) - Oklahoma
Oklahoma League for the Blind
501 N. Douglas Ave.
Oklahoma City,
OK
73106
405-232-4644 Voice
Organization of parents, educators and advocates supporting quality educational services and improved opportunities for children who are blind or visually impaired. Offers parent support, training conferences, resources, recreation and other activities for children and advocacy.
National Federation of the Blind (NFB)
1800 Johnson St.
Baltimore,
MD
21230
410-659-9314 Voice
410-685-5653 Fax
The National Federation of the Blind is the largest and most influential membership organization of blind people in the United States. The NFB improves blind people's lives through advocacy, education, research, technology, and programs encouraging independence and self-confidence.
National Federation of the Blind (NFB) of Oklahoma
242 E. 35th St
Tulsa,
OK
74105
918-850-6751 Voice
National Organization of Parents of Blind Children
National Federation of the Blind
1800 Johnson St.
Baltimore,
MD
21230
410-659-9314, Ext. 2360
Bcheadle@nfb.org
www.nfb.org/nopbc
Association of parents of children with visual impairments. The organization provides information, support and an opportunity for parents to exchange experiences and resources. The National Federation of the Blind distributes many different magazines, newspapers, newsletters, speeches, reports, books, and other pieces of literature to inform the public (blind and sighted) about the true nature of blindness and about issues of interest to the blind.
Oklahoma AIDS Hotline
800-535-2437 Statewide Hotline
Oklahoma Association of the Deaf
P.O. Box 522
Haskell,
OK
74436-0552
A local resource for information.
Oklahoma City Association of the Deaf
1106 N.W. 15th St
Oklahoma City,
OK
73106
405-685-1126 TDD
405-525-5323 TDD
Oklahoma Council of the Blind
P.O. Box 1476
Oklahoma City, OK 73101
Alternative Mailing Address:
2801 Carlton Way
Oklahoma City,
OK
73120-2802
877-578-6212 Toll Free
okcbinfo@okcb.org
www.okcb.org
Statewide organization of blind individuals, families and friends. Activities include public education on blindness, advocacy, social events, resource information and peer support. Advocacy interests include education, braille services, rehabilitation, employment, transportation, assistive technology, accessibility, support services and civil rights. Affiliate of the American Council of the Blind.
Oklahoma Mental Health Consumer Council
3200 N.W. 48th St., Ste. 102
Oklahoma City,
OK
73112
888-424-1305 Toll Free
405-604-6975 Voice
405-605-8175 Fax
ConsumerCouncil@okmhcc.org
www.okmhcc.org
The Oklahoma Mental Health Consumer Council has six major purposes: to establish a statewide network to serve persons with serious mental illness and persons with emotional problems; to bring about a closer association among groups and individuals in an effort to improve the quality of services provided; to provide outreach to the minority community; to identify community needs statewide and develop ways to meet those needs; to assist in establishing consumer groups where needed and improve the effectiveness of existing groups; and to provide a clearinghouse for collection and distribution of mental health related information.
Oklahoma Parents Center
877-553-4332 Toll Free (parents only)
405-379-6015 Voice
405-379.0022 Fax
okparentctr@aol.com
www.oklahomaparentscenter.org
Parents of children with disabilities often need specialized information and skills to help them understand and negotiate their way through the special education maze. Oklahoma Parents Center offers parents one on one assistance with educational issues and concerns. They also hold workshops statewide throughout the year. The center's staffed with parents of children with special needs. They can be contacted for information, resources, training or support.
TARC
16 E. 16th St., Ste. 405
Tulsa,
OK
74119-4447
800-688-8272 Toll Free
918-582-8272 Voice
918-582-3628 Fax
tarc@ddadvocacy.net
www.ddadvocacy.net
TARC is committed to ensuring a high quality of life for Oklahomans with developmental disabilities and their families through education, empowerment, support and advocacy. TARC programs include: ARCCorps recruits and trains volunteer guardians and advocates willing to assist people with developmental disabilities when they are making important decisions that affect their health, safety, and personal development.
ddadvocacy.net is the TARC online presence and is a comprehensive source for Oklahomans seeking information or resources for themselves or others with a disability or wanting to connect with others in similar situations.
Family Support delivers services in both English and Spanish including parent education and training, educational advocacy, assistance in using community resources, and fostering connectedness among families that have members with developmental disabilities.
Oklahoma Advocates Involved in Monitoring (OK-AIM) trains more than 700 volunteers statewide to visit state-funded residences to monitor the quality of the everyday lives of people who have developmental disabilities.
Outreach/Service Management expedites access to the full range of services needed by people with developmental disabilities and their families at critical times in their lives such as the birth of a child with a disability; the diagnosis of a disability in a young child; the entry of a child with a disability into the public school system; transition from the education to the adult service system; and the death of the person primarily responsible for caring for an individual with a disability.
Self-Advocacy promotes the development of social and decision-making skills that enable people with developmental disabilities to live fulfilling, self-directed lives in the community; be contributing members of society; and have the support of a peer group.
TARC - Ada Satellite
124 S. Broadway, Ste. 307
Ada,
OK
74820
580-421-9441 Voice
580-421-9441 Fax
TARC - Oklahoma City Satellite
2915 N. Classen Blvd., Ste. 122
Oklahoma City,
OK
73106-5450
405-557-1878 Voice
405-524-1058 Fax
United Cerebral Palsy of Oklahoma
10400 Greenbriar Pl., Ste. 101
Oklahoma City,
OK
73159
800-827-2289 Toll Free
405-759-3562 Voice
Local resources available.
World Association of Persons with Disabilities
5016 Alan Ln.
Oklahoma City,
OK
73135
405-672-4440 Voice
405-672-4441 Fax
execvp@wapd.org
www.wapd.org/chapters/page.php?cid=14
The Oklahoma State Chapter of the World Association of Persons with Disabilities (WAPD), a not for profit, non-political entity that has a mission to help all disabled persons of the Sooner State with current and up to date information; advocacy that will provide strong support to their daily lives.
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07/09/2008